Help with Developing data collection form for an Oncologic clinical data registry
Case Study
The academic medical center begins building an oncologic clinical data registry. Jane’s case, and many like hers, are very instructive for training purposes. This multidisciplinary effort is led by the Oncology Department and is seen as a way to enhance their institutional reputation as a leader in cancer care, as well as potential revenue stream for vendor participation. They would like to stand this up in 12-16 months.
Questions for Consideration
What are the trade-offs for the patient to participate in a clinical data registry?
List three technical considerations need to be addressed for this kind of effort?
Review
Epi Databases and Registries PPTDownload Epi Databases and Registries PPT
Sample Data Collection FormLinks to an external site.
Submit
Develop a data collection form for an oncologic clinical data registry that is no more than two pages long. Include at least one page of instructions for clinicians to gather/document and submit data. Consider what types of data will be collected and where it can be found. Which team members have the most effective resources to collect data? Provide details about what you would include and well as which data elements are excluded.
6/19/23, 10:15 PM Module 5 – FHIR vs. CCDA
https://sju.instructure.com/courses/35234/assignments/456325 1/1
Total Points: 15
Module 5 – Data Collection Form
Criteria Ratings Pts
5 pts
5 pts
5 pts
F5 Human Factors and Design Students will draw on socio‐technical knowledge regarding the social behavioral sciences and human factors engineering to apply to the design and implementation of information systems and technology. threshold: 3.0 pts
5 pts Exceeds Expectations
3 pts Meets Expectations
2 pts Near Mastery
0 pts Does Not Meet Expectations
Quality of Narrative Student is able to clearly describe concepts, assess data standards, and communicate using organized and structured approaches.
5 pts Full Marks Uses advanced terms and applies concepts to create a thoughtful and concise assessment of the dataset. Report is professional and polished.
3 pts Meets Expectations Describes concepts in rich terms, uses appropriate references to meaning of data, and ties the concepts directly to course material or data presented. Some errors or issues with syntax will be highlighted.
0 pts No Marks Describes concepts in basic terms, uses appropriate references to meaning of data, and considerable organization of data presented. However this is limited critical assessment surrounding the use or application of the information in the data set.
F3 Effects of Theories Identify the effects of social, behavioral, legal, psychological, management, cognitive, and economic theories. threshold: 3.0 pts
5 pts Exceeds Expectations
3 pts Meets Expectations
2 pts Near Mastery
0 pts Does Not Meet Expectations